|Deani Baillie, UK|
I saw a Vascular Surgeon as a private patient who did ultrasound and ordered bloods. My first step to moving closer to what would become an unknown rollercoaster ride.
After seeking advice from others who have great understanding of Scleroderma, I am finally starting to put these behind me. Without the support and information along the way, I don't know how I would have come out the other end. Thank You Nicola, a true inspiration to all!
Numerous drugs trialled and 3 courses of Iloprost later, I am now on a path filled with positive people, knowledgeable clinicians, and my heart even though I can't say the same for my body, is ready to tackle whatever is thrown my way.
I know now, I will do all I can, to help minimise, the impact and negative experiences other may face when trying to come to a diagnosis.
I am now under the care of the Scleroderma Unit at The Royal Free Hopspital, where I can honestly say, my experience has been completely different! A huge positive..
Big thanks go to Deani for sharing her diagnostic experience.
Please send your prayers and thoughts to Deani as she is currently undergoing Iloprost treatment at the Scleroderma Unit, The Royal Free Hospital.
In 2015, I was honoured to be part of the medical team who devised the NHS Guidelines for treatment of digital ulcers in Systemic Sclerosis. Click here
I focussed on the treatment of digital ulcers on DAY 24 of Scleroderma Awareness Month 2016, Click here
|June 2017 total|
|Thanks to USA patient Sharon Esposito for sharing her wonderful creativity|