Welcome to my blog - I was diagnosed in 1997, and given a 15month prognosis. In 1998 I became a patient at the Scleroderma Unit, The Royal Free Hospital. The cause and cure to both Scleroderma and Raynaud's remain unknown. Please donate to help fund medical research where 100% of your donation will be used for research purposes only.
#SclerodermaFreeWorld #RaynaudsFreeWorld #RareDisease
Sadly, Silvana was not well enough to take part in my
recent ‘patient profiles research’ campaign for scleroderma awareness 2017. Index
Silvana will always hold a special place in my heart.
Her memory will most definitely live on by the global
scleroderma and Raynaud’s community.
I feel extremely blessed to have had such a special
friendship with Silvana, and have immense gratitude to Cristina for bringing us
together, whom, has kindly written the following, about our lovely friend Silvana:
‘Silvana was diagnosed with Raynaud’s and Scleroderma in
She surpassed her prognosis by 7 years.
She came from a close, loving family and was the only girl
of 4 children.
She travelled extensively and never shielded away from
adventure. She was involved in sport all of her life, until the illness became
debilitating. She even volunteered as an interpreter at the 2000 Olympics.
Her achievements were many and varied, but it never showed to those who did not know her, as Silvana was quiet, unassuming and ever
To we who were close to here, she was a devoted, non
judgemental and loyal friend.
A tower of strength
and positivity in the face of adversity, rarely saying how the illness made her
feel, because pity did not exist in Silvana’s world.
Silvana’s integrity, courage, loyalty and loving heart will
live on in all who she touched.’
Silvana and Cristina shortly after Silvana had first been diagnosed with Scleroderma