Read more, click www.eurordis.org/news/living-with-scleroderma-and-raynauds-disease
I discussed the contents of Volume 1 Number 2 here
On a personal level, it is unlikely that the discovery of the cure for Scleroderma will be of much assistance to me, since I am now living with the damage which the Scleroderma, when at its most aggressive and active, has caused.
To view the importance of Expert Specialist Centers
To view the BSR and BHPR guidelines for Systemic Sclerosis treatment and management click here
Please DONATE to help fund medical research at the Scleroderma Unit where 100% of your monies will be used for research only.
An edited version of this article can be found here on the RareDiseaseUK website
Living the dream, scleroderma style, hoping for a cure
|Nicola Whitehill 30.11.16 'My skin is cured from scleroderma' 19 years post diagnosis|